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Day two, progesterone, March

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Nancy Howells - 02 Mar 2004 14:02 GMT
God, I hate progesterone.  I never quite know how it's going to go - as
far as the WOE this month, it's a good thing - nausea keeps me from
wanting to eat *at all* which definitely keeps me "in line."  This is
opposed to other months when the progesterone makes me ravenous.

I have noticed a definitely correlation, however, between the ravenous
phase and anger/frustration versus the nausea and depression.  It's not
in my head - it only happens when I'm on the big P, and I can track it
according to when I've forgotten to take the d***ed stuff too.  

So, today so far:  35 minutes sweaty exercise (before my knee popped - I
had a little run in with a large object a couple of days ago that
semi-dislocated it, though it's fine, and I'm not in pain); 2 oz cheddar
cheese (it's an early and big lunch day) and coffee with 1 T. cream.  I
feel like I'm gonna barf.

9 more days total to go on the stuff.  Let's hope it's a good way to
progress on the WOE.  (cloud, silver lining, etc.)

Signature

Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

Marcella Missirian - 02 Mar 2004 20:51 GMT
> God, I hate progesterone.  I never quite know how it's going to go - as
> far as the WOE this month, it's a good thing - nausea keeps me from
[quoted text clipped - 17 lines]
> --
> Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

Nancy,
Why are you on progesterone and are you on synthetic or natural? I'm on
natural and feel great.

Marcella
emkay - 03 Mar 2004 01:38 GMT
>I have noticed a definitely correlation, however, between the ravenous
>phase and anger/frustration versus the nausea and depression.  It's not
>in my head - it only happens when I'm on the big P, and I can track it
>according to when I've forgotten to take the d***ed stuff too.  

Nancy -- I took progesterone for many years (10 days/month), and it also
caused depression and ravenous hunger in me, too.  (Although, the
depression from the progesterone wasn't nearly as bad as that caused by the
first drug they had tried, which was Provera.  Now *that* was misery.)

Funny thing about the "ravenous hunger" -- I never even noticed it until I
started LC'ing.  The progesterone-induced hunger was very similar to the
"blood sugar hunger" so aptly described by jpatti in the recent "Staying
just a bit hungry" thread.  And in my high-carb days, I had that all the
time anyway.  It wasn't until it went away (with LCing) that I noticed how
its return correlated to progesterone days.

About  a year and a half ago, my doc took me off the progesterone, but it
was too soon -- my original problems returned in full force, so I went back
on.  I went off it again last fall, and so far so good.  No return of
original problems, and no more of the caged-lion-pacing-franctically hunger
swings, either.  So maybe there's light at the end of the tunnel for you,
too.

Em
Nancy Howells - 03 Mar 2004 16:26 GMT
> >I have noticed a definitely correlation, however, between the ravenous
> >phase and anger/frustration versus the nausea and depression.  It's not
[quoted text clipped - 26 lines]
>
> Em

We can hope.  I'm on day three - definitely in the depressive phase. I
know what you mean by provera - I was on that, same thing, worse.  I was
also on megace prior to that, and we won't talk about that.  I nearly
committed suicide on megace - with no other reason than the drug itself.  
And we won't talk about the other things that went with it.  The
prometrium is *much* more amenable.

Still not hungry this week.  This is good, I guess.

Signature

Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

SouthrnElf - 03 Mar 2004 17:59 GMT
Maybe we need a progesterone users support group. My GYN didn't warn me about
any of the side effects. I thought I was going nuts. It was my family doctor
who told me what was happening to me.

Seriously if anyone knows of a group that shares info on using this med I would
love to know about it.Ot if anyone would like to get together about
progesterone I would be glad to sponser a group.  It looks as if I'll be on it
a long time.

Debra
SouthrnElf@aol.com
Nancy Howells - 04 Mar 2004 02:18 GMT
> Maybe we need a progesterone users support group. My GYN didn't warn me
> about
[quoted text clipped - 11 lines]
> Debra
> SouthrnElf@aol.com

Me, too - so I, too, would be interested.

I got some warning, but not about what the megace would do.  It was the
worst year of my life, with no "good" reason - there was one year that
was worse, but it had good reasons.

Signature

Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

Jenny - 04 Mar 2004 16:24 GMT
Nancy,

If I stayed on progesterone for more than a few days I'd be at serious risk
for suicide. Seriously. By day three on Promethium I was collapsing into
tears every half hour for no reason at all and my Sweetie said, "What the
heck did you do to yourself? I've never seen you like this."  The old high
progesterone birth control pills did this to me too, except I stayed on them
until started having non-stop bleeding that lasted for weeks.

With the Prometrium, I stopped taking it, got back to normal, and told the
doctor that there was no way I was going to take another tab of  Prometrium
no matter what horrible things would happen to my health.  Now she just does
an annual ultrasound scan and so far I don't have any problems.

-- Jenny  - Low Carbing for 4 years. At goal for weight. Type 2 diabetes,
hba1c 5.2.
Cut the carbs to respond to my  email address!

Low carb facts and figures, my weight-loss photos, tips, recipes,
strategies for dealing with diabetes and more at
http://www.geocities.com/jenny_the_bean/

Looking for help controlling your blood sugar?
Visit  http://www.alt-support-diabetes.org/Newly%20Diagnosed.htm

> > Maybe we need a progesterone users support group. My GYN didn't warn me
> > about
[quoted text clipped - 20 lines]
> --
> Nancy Howells (don't forget to switch it, and replace the ;) to send mail).
SouthrnElf - 04 Mar 2004 19:01 GMT
>If I stayed on progesterone for more than a few days I'd be at serious risk
>for suicide. Seriously. By day three on Promethium I was collapsing into
>tears every half hour for no reason

I have been on some form of progesterone off and on for years.I have
endometriosis. I did OK when it was just depo-provera every 12 weeks. But they
moved me up to every 8 weeks and I started having trouble. Then they decided I
could go off everything as they thought I had gone through menopause and in
their opinion it had probably happened year or so previously and the depo had
concealed it. I was in my late 40's at the time. Low and behold a year passes
and I start my cycles again. Everything is fine for a while then I start
bleeding all the time and they put me on one med after another. I get depo
shots every 4 weeks. I am going nuts. I cry all the time. I am queasy and
bloated. I can't sleep but am so tired I can hardly move. I get another round
of tests and am told its probably endometrial cancer (a cancer that thrives on
estrogen). I have surgery and its not cancer but close as it is hyperplasia. I
am told it will become cancer any day if not treated immediately. A hysteretomy
would be the best but because of other health problems is not possible for me.
Now I have had two d&c's, a couple of biopsies, multiple scans, lots of meds, a
GYN, a family practice doctor and a consulting team of specialists from Univ of
Birmingham. I am still bleeding all the time eight months later and have a
progesterone IUD but because of all the amount of depo I had along with this
IUD they think I'm may be still bleeding because I am now too low on estrogen.
Remember endometrial cancer is progesterone driven so this is a connundrum. So
in spite of the IUD which is still in place I am on low dose extrogen for a
month. I'll admit I feel much better but every day I wonder if the cost will be
cancer. Tears, mood swings, headahes, bloating, increased blood glucose ( I am
diabetic) all are still there but my mood is now only miserable at least its
not suicidal. For a while I was really worried or would have been if it hadn't
taken too much effort to think. LOL Oh and I'm now waiting to find out if I am
having more surgery in the next week or two.

Debra
SouthrnElf@aol.com
Jenny - 05 Mar 2004 00:02 GMT
Debra,

What a miserable horrible thing to have to get through.  HUGS!!!!

From what I've read it is harder to get cancer than they make it sound. Even
with "increased risk" it is usually one or two people per 10,000. Much
lower, say, than the number of people who die from gastric bypass surgery
which everyone is so high on.

-- Jenny  - Low Carbing for 4 years. At goal for weight. Type 2 diabetes,
hba1c 5.2.
Cut the carbs to respond to my  email address!

Low carb facts and figures, my weight-loss photos, tips, recipes,
strategies for dealing with diabetes and more at
http://www.geocities.com/jenny_the_bean/

Looking for help controlling your blood sugar?
Visit  http://www.alt-support-diabetes.org/Newly%20Diagnosed.htm

> >If I stayed on progesterone for more than a few days I'd be at serious risk
> >for suicide. Seriously. By day three on Promethium I was collapsing into
[quoted text clipped - 23 lines]
> month. I'll admit I feel much better but every day I wonder if the cost will be
> cancer. Tears, mood swings, headahes, bloating, increased blood glucose
I am
> diabetic) all are still there but my mood is now only miserable at least its
> not suicidal. For a while I was really worried or would have been if it hadn't
[quoted text clipped - 3 lines]
> Debra
> SouthrnElf@aol.com
Nancy Howells - 05 Mar 2004 01:44 GMT
> Debra,
>
[quoted text clipped - 85 lines]
> > Debra
> > SouthrnElf@aol.com

Debra - I'm so sorry that this is happening to you.  Endometrial cancer
is NOT progesterone driven - it's estrogen driven, and that's why they
have you on progesterone - to stop the hyperplasia.  That's why I'm on
progesterone - I had several positive hyperplasia reads, and the
progesterone is keeping it at bay.

You shouldn't wake up with cancer due to the progesterone - the estrogen
I would worry about.

Plus sidek, though:  low-carb should help this a little.

Signature

Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

SouthrnElf - 06 Mar 2004 00:54 GMT
>Debra - I'm so sorry that this is happening to you.  Endometrial cancer
>is NOT progesterone driven - it's estrogen driven

Sorry you're right -  that was a brain freeze and I really did mean to say
estrogen driven. I can't seem to do the simpliest things without making dumb
mistakes these days. LOL

I didn't know that about low carb, although I am thrilled to hear it. How does
it help anyway?
Nancy Howells - 06 Mar 2004 01:04 GMT
> >Debra - I'm so sorry that this is happening to you.  Endometrial cancer
> >is NOT progesterone driven - it's estrogen driven
[quoted text clipped - 8 lines]
> does
> it help anyway?

The whole estrogen thing is about insulin resistance - it's all a part
of polycystic ovary issues.  It's my understanding that, if you keep the
blood glucose under control, the insulin production is under control,
and that helps to smooth out IR and that helps to smooth out PCOS, which
helps with the estrogen issue.

Don't worry about brain fog - it's probably the progesterone... believe
me.  *sigh*.

The uterine cancer thing sucks - I had three positive readings for UC
awhile go, and went on the progesterone to stop it - it seems to be
working.  I feel bad for Jenny, who couldn't tolerate the Prometrium,
because it was a last-ditch thing for me.  

I'm almost done with my course - one more dose for the month.  My voice
is about a third lower than it usually is - I have a performance on
Sunday in Lexington.  But there was minimal depression, and no anger.  
Also, no cravings/hunger until today.  I handled it well, though, with
the help of a few deviled eggs.

Hang in there, Debra... know you're not alone, and NOT crazy, no matter
how you feel when under the influence of the progesterone.

Signature

Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

Marcella Missirian - 06 Mar 2004 10:53 GMT
> The whole estrogen thing is about insulin resistance - it's all a part
> of polycystic ovary issues.  It's my understanding that, if you keep the
[quoted text clipped - 21 lines]
> --
> Nancy Howells (don't forget to switch it, and replace the ;) to send mail).

Nancy,
You're right about the progesterone. I took prometrium and couldn't
tolerate it. I went to a naturopath who's also an Endo. I have pretty
severe PCOS and have known I've had it since I was 13. I'm now 40.

Unable to tolerate the prometrium (migraines) I switched to this awesome
naturopath/Endo. He's amazing. He put me on natural compounded
progesterone from a compounding pharmacy. It's not synthetic - it's the
real stuff and it's mixed with some kind of oil base and put into a
gelatin capsule. I start taking it on the 7th day after my last day of
bleeding all the way through until I start my period again. It's the
best med I've ever taken - with low-carbing, on glucophage and spiro,
the usual "before period breast swelling" wasn't going down, and in fact
my breasts swelled to about 3x's their size and my cycles were coming
every 15 days. I was miserable.

This new doc immediately gave me the natural progesterone, 200 mg that
he had in his office and then ordered more for me from this particular
compounding pharmacy in Colorado. I live in California. Within 3 days,
and I'm not joking, I lost about 18 pounds of water weight, my breasts
finally came down to normal size and I'm back on a regular (for me)
26-28 day cycle. I break out a little bit but I do that anyways from the
PCOS. My periods had also become super heavy and I couldn't go out of
the house for the first 2-3 days. With the progesterone they're normal
to light. I seriously have never felt better and the natural
progesterone helps in the conversion of thyroid hormone inactive T4 to
active T3 which also has helped a lot in weight loss. Natural
progesterone also helps with eliminating and it has a calming effect as
opposed to synethic progesterone which for me, made me feel like I was
PMS'ing all the time.

The voice thing: I have a smokey low toned voice naturally (don't smoke
at all) and I noticed when I started having the menstral/breast/bloating
issues my voice was getting lower and I was often losing it completely.
With the natural progesterone it's gone back to normal and I'm not
having "scratchy almost losing it" episodes either. I know how important
your voice is to you and it sounds like you're going through some awful stuff.

Just FYI, I'm on 2000 mg of brand Glucophage XR and take compounded time
release natural T3 as well as spiro along with Low-carbing. It's been
slow but over 2 years I've lost about 80 lbs. I feel like I've been
struggling and battling my body since I first got excited about finally
getting "boobs!" LOL!

I hope you're doing better.

Best,
Marcella
 
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