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susanjoneslewis - 24 Jun 2004 00:19 GMT
Dallas, my 11 year old son went to the dr yesterday for a checkup and a
refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
been a "big" kid for his age and I suspect always will be, his father is
6'3 and a hefty guy. the Dr who is semi-new to us has pre diagnosed
Dallas as having juvenile diabetes(t1). What I mean by pre diagnosed is
we have a bloodworkup and screening tomorrow morning, Dallas will have
to fast and then go to do the lab work, then I guess in a day or so we
will see where it all stands. The dr bases his assumption on several
things, the weight loss/gain yo-yo of course being the primary symptom.
Secondly was the fatigue and cravings he almost *always* has. Third, he
looked at Dal's skin and I'm not sure what he concluded from that, he
said something about brown patches, especially on his knuckles and at
his throat. I'm not sure what all that was about, I have not seen
anything about that on diabetes websites I've visited. But he does have
them. Fourth and Fifth he has constant thirst and frequent urination
(I'm sorta used to him being thirsty all the time and carrying a drink
with him almost non stop and having to go pee 100 times a day) Six, the
binge/closet eating/cravings that I've try to brush off as "a phase" or
as "that's just Dallas" for so long.

On top of this of course as I've mentioned before Dallas is ADHD(no
flames please, he's been screened and I'm very secure with the dx of
ADHD and yes I realize that it's over-dx'ed and over-rx'ed, and no I'm
not a lazy mother who doesn't discipline her child)

And on top of that Dallas has encopresis - which we are treating with
therapy and routine meds to assist his bm's.

*sigh*
I felt like a ton of bricks was dropped on me when the Dr said "juvenile
diabetes"
I felt sick and stupid. How come I didn't recognize this and why wasn't
it diagnosed sooner?
After all my time spent changing my WOE to what it is today, why am I
blind to what was obviously right in front of me in my son. I know it's
dumb to beat myself up like this, but I have to wonder where I messed
up. Mark reacted a bit differently which pissed me off too, he was
pretty nonchalant about it and passed if off with a "if he ate better.."
speech which I could have done without a f*cking lecture at that
particular moment. I may have said 2 words all night after that.

Dallas doesn't know much about diabetes yet and we have briefly touched
on the subject so far, about how his eating habits will need to change.
How he will need to start taking on more exercise with me than he does
now(he walks with me almost 3x a week) I guess once we find out more
from the lab work we can move further into diet and exercise for him.

I don't really have many questions for you guys, except.. anyone have
links or resources for me on this issue? and anyone have a child with t1
diabetes? If/when we get a dx of t1 on him, should I seek the advice of
a nutritionist? endo? which type of help should I get in that area? If
its t1 I don't think I will feel comfortable with just our family dr.

Thanks gang for listening. I've gotta go now and dream up something for
dinner.

Susan
280/191/165(mini)/140
Ignoramus19080 - 24 Jun 2004 01:18 GMT
Try reading Dr Bernstein's Diabetes solution, which is especially
applicable to type 1 children. It is an excellent book. I am deeply
saddened by his diagnosis, although I wonder whether Dallas could
actually be a T2. T1s can actually have a relatively long and
productive life, as long as they are meticulous in keeping their
diabetes under control.

Please do not blame yourself too much, you are not a doctor and could
not even fathom such a disease... Not much you can do to prevent T1
diabetes, either.

i

> Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
[quoted text clipped - 54 lines]
> Susan
> 280/191/165(mini)/140
susanjoneslewis - 25 Jun 2004 03:30 GMT
Thanks for the suggestion ig, I will pick up the book next week when I
get into Austin.

Susan
280/191/165(mini)/140

> Try reading Dr Bernstein's Diabetes solution, which is especially
> applicable to type 1 children. It is an excellent book. I am deeply
[quoted text clipped - 67 lines]
> > Susan
> > 280/191/165(mini)/140
Ignoramus31038 - 25 Jun 2004 04:11 GMT
> Thanks for the suggestion ig, I will pick up the book next week when I
> get into Austin.

It is much cheaper to buy used at amazon.com.

alt.support.diet.low-carb is full of diabetics, also, as is
alt.support.diabetes.

Let us know what's his final diagnosis... I was surprised to hear that
he was diagnozed T1.

i

> Susan
> 280/191/165(mini)/140
[quoted text clipped - 104 lines]
>> > Susan
>> > 280/191/165(mini)/140
Dewolla Stepon - 24 Jun 2004 01:22 GMT
Susan, I don't have any info or help, but you and Dallas are in my prayers.
Hang in there.

- Dewolla

> Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
[quoted text clipped - 54 lines]
> Susan
> 280/191/165(mini)/140
susanjoneslewis - 25 Jun 2004 03:31 GMT
Thanks Dewolla, and you are in mine :)

Susan
280/191/165(mini)/140

> Susan, I don't have any info or help, but you and Dallas are in my prayers.
> Hang in there.
[quoted text clipped - 59 lines]
> > Susan
> > 280/191/165(mini)/140
Chris Braun - 24 Jun 2004 01:26 GMT
Susan, I'm sorry you and your son have gotten this news.  Maybe the
tests won't show what the doctors fear.  If they do, I hope you can
find the best resources possible to help deal with it.  You and your
family are in my prayers.

Chris
262/145/ (145-150)
susanjoneslewis - 25 Jun 2004 03:33 GMT
Thanks Chris,

I have been pouring over the internet today looking at information and
trying to get it all in my head. I hope as well that the lab work turns
out well.

Susan
280/191/165(mini)/140

> Susan, I'm sorry you and your son have gotten this news.  Maybe the
> tests won't show what the doctors fear.  If they do, I hope you can
[quoted text clipped - 3 lines]
> Chris
> 262/145/ (145-150)
jayjay - 24 Jun 2004 03:27 GMT
> Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> refill on his allergy meds. Dal weighs 170 lbs and is 5'1.

I'm not meaning to flame here.  But really - how did you NOT see the obesity
if he's 11 yrs old, 5'1" and 170lbs!!!

My 5' tall 10 yr old weighs 85lbs and he's not underweight or super skinny,
just a typical 10 yr old who's hormones haven't kicked into full speed yet
to fill him out.   He's gonna out grow me in height this year.   My DS has
always been a "big kid" for his age - towering over the kids his age.   But
certainly not in weight/height ratio.

I feel bad for Dallas, and for you for not recognizing this earlier.   He
now has to learn to monitor himself so closely, a huge responsibility for a
kid his age, and it does take away from allowing a kid to be just a kid.

>He's always
> been a "big" kid for his age and I suspect always will be, his father is
[quoted text clipped - 53 lines]
> Susan
> 280/191/165(mini)/140
susanjoneslewis - 25 Jun 2004 03:41 GMT
I never said I didn't recognize the obesity jayjay. I said I didn't see
the TYPE 1 DIABETES. In more than several of my past threads I have
mentioned my son and his weight issues (walking with me, maybe going to
the gym with me, etc)

Thanks for the support?
Sorry if I sound touchy on the subject, but I *am* touchy on the subject
and I hope you thank God every single day that you have an average
child. And as far as feeling bad for me for "not recognizing this
sooner"? Don't feel bad for me. We'll cope. But understand something,
this is not type 2 diabetes, it's not brought on by diet. It's an organ
failing to do its job which leads to the weight gain/loss. How the HELL
am I supposed to know what his pancreas is doing or not doing? I am not
a doctor.

It's like if your DS got diagnosed with something horrible(God forbid)
like cancer or something equally as devastating and my saying, "well,
jayjay, he had red food dye once, didn't you realize it would cause
cancer?"

Don't even respond to this, because I really don't feel like defending
my maternal wisdom or lack of it right now.

Susan(yes, I'm bitchy)
280/191/165(mini)/140

> > Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> > refill on his allergy meds. Dal weighs 170 lbs and is 5'1.
[quoted text clipped - 69 lines]
> > Susan
> > 280/191/165(mini)/140
Ignoramus31038 - 25 Jun 2004 04:15 GMT
> I never said I didn't recognize the obesity jayjay. I said I didn't see
> the TYPE 1 DIABETES. In more than several of my past threads I have
[quoted text clipped - 10 lines]
> am I supposed to know what his pancreas is doing or not doing? I am not
> a doctor.

I did not know that type 1 diabetes leads to weight gain! I thought
that it was exactly the opposite, that type Is are not able to gain
weight and in fact lose weight.

http://www.nlm.nih.gov/medlineplus/ency/article/000305.htm

> It's like if your DS got diagnosed with something horrible(God forbid)
> like cancer or something equally as devastating and my saying, "well,
> jayjay, he had red food dye once, didn't you realize it would cause
> cancer?"

Don't beat yourself up over all this Susan, you are going to get all
kinds of responses... I personally think that JayJay's response was
not warranted by facts in the case of type I diabetes.

It's time to read about this...

Be aware that the american diabetes association's standard diet for
diabetics was not developed with much thinking.

i
OceanView - 24 Jun 2004 05:15 GMT
> Dallas, my 11 year old son went to the dr yesterday for a
> checkup and a refill on his allergy meds. Dal weighs 170
[quoted text clipped - 65 lines]
> Susan
> 280/191/165(mini)/140

Sorry to hear, but the sooner you know the sooner you can deal
with it.  I was a fat kid too, but when I was 12 at 5'9 I was
140, so he must be pretty far into the obesity range.  

My mother used to say I was big-boned (I'm not), or I had
"baby fat" (11 years later).  It would have been better for me
if she'd said, you're fat and you're going to have social
ridicule and poor quality of life your whole short life if you
don't make some changes.  Instead, she bought the junk food I
demanded and enabled me to continue gaining. I wish she'd
given me more "tough love."

Anyway, good luck with the tests.
Chris Braun - 24 Jun 2004 07:13 GMT
>Sorry to hear, but the sooner you know the sooner you can deal
>with it.  I was a fat kid too, but when I was 12 at 5'9 I was
>140, so he must be pretty far into the obesity range.  

It's hard to see how you could have been fat at 140 and 5'9".

Chris
262/145/ (145-150)
Cynthia Perry - 24 Jun 2004 15:13 GMT
>Sorry to hear, but the sooner you know the sooner you can deal
>with it.  I was a fat kid too, but when I was 12 at 5'9 I was
>140, so he must be pretty far into the obesity range.  

I too am sorry to hear this and wish Susan the best coping with it.

>My mother used to say I was big-boned (I'm not), or I had
>"baby fat" (11 years later).  It would have been better for me
[quoted text clipped - 5 lines]
>
>Anyway, good luck with the tests.

Well, my mother DID say I was fat, that I shouldn't sit in her good
chairs because I'd break them, that I'd have trouble in life, etc...,
etc... etc... ad nauseum.

It certainly didn't help me any. I mean, I was living it, and I knew
about the social ridicule... which I probably would've gotten, fat or
not, as I was a shy kid, sensitive and artistic. (And I wasn't all
that fat as a kid... in high school, at 5'7", I was about 140 pounds.)

What it did to me was make me grow up feeling unloved, lonely and
horribly unhappy. And it didn't stop me eating. If anything, I
probably ate more for comfort. And I sneaked food. No, mom did not buy
*me* junk food, but she did buy things like Doritos, nuts, chips, ice
cream for my dad. And believe me, I found them and sneaked them, no
matter how well they were hidden.

And I ate extra of things like bread, butter, peanut butter, etc...
that were generally around the house.

Kids aren't stupid... they know when they are fat. Believe me, they
hear about it from school acquaintances, or just see they are
different from the norm. Telling them the consequences makes a
difference only a small percent of the time.

Just like telling kids the consequences of smoking or drinking or
unprotected sex or drugs keeps all kids from trying that.

I'm not saying that it isn't a good thing to let kids know what the
consequences are, but assume they are smart enough to know in many
cases. Harping on something like this often gets the opposite results
from what you want.

That said, your mom should not have continued to buy you junk food!
And it may not have helped to foster any illusions about your weight.

I feel for Susan and her son... it's easy for things to get out of
hand and now that they are, her son is gonna go through a tough time
adjusting to new dietary restrictions. And if he doesn't adjust, the
consequences are pretty bad.

However, at least Susan has learned for herself... and she can now
offer help to her son and support. She might also consider looking for
support groups for young folk with diabetes... that might give her son
a place to "air it out" when he needs to.

Cynthia
Ignoramus31038 - 24 Jun 2004 15:26 GMT
> Well, my mother DID say I was fat, that I shouldn't sit in her good
> chairs because I'd break them, that I'd have trouble in life, etc...,
> etc... etc... ad nauseum.

Sounds pretty anoying to me.

> It certainly didn't help me any. I mean, I was living it, and I knew
> about the social ridicule... which I probably would've gotten, fat or
> not, as I was a shy kid, sensitive and artistic. (And I wasn't all
> that fat as a kid... in high school, at 5'7", I was about 140 pounds.)
>
> What it did to me was make me grow up feeling unloved, lonely and

the rest of the story snipped...

So, suppose that you had a sister and your sister had a daughter who
was fat.

What would be your advise to your sister if she asked you how to make
her daughter slim effectively. What would you suggest she say or do.

i
Cynthia Perry - 26 Jun 2004 14:50 GMT
>> Well, my mother DID say I was fat, that I shouldn't sit in her good
>> chairs because I'd break them, that I'd have trouble in life, etc...,
[quoted text clipped - 18 lines]
>
>i

I would suggest keeping her daughter involved in physical
activities... and keep junk food out of the house, period. It
certainly didn't help that the stuff was available, even if hidden!

I would also tell my sister that you can't MAKE anyone slim... that
these choices ultimately belong to the daughter. I would tell her to
set good examples for her daughter and fix healthy meals and hope for
the best. I might tell her to mention it to her daughter, perhaps
using myself as an example, but not to harp on it.

If her daughter is old enough... I might suggest that my sister get
her interested in weight training.

I would also tell her to love her daughter no matter what, even if her
daughter continues to make bad choices. It's true I am now fat... but
I'm also am now HAPPY! So being fat does not preclude happiness.

OTOH, I'd prefer not to be so fat. So I'm working on it. Gads I'm sore
from my workout last night!

Cynthia
Ignoramus13867 - 26 Jun 2004 17:32 GMT
>>> Well, my mother DID say I was fat, that I shouldn't sit in her good
>>> chairs because I'd break them, that I'd have trouble in life, etc...,
[quoted text clipped - 40 lines]
>
> Cynthia

All good, sensible stuff, thanks. I am also mostly trying to get slim
for health, not for looks.

i
Cynthia Perry - 26 Jun 2004 18:05 GMT
>>>> Well, my mother DID say I was fat, that I shouldn't sit in her good
>>>> chairs because I'd break them, that I'd have trouble in life, etc...,
[quoted text clipped - 45 lines]
>
>i

With the exception of the problems I have carrying excess weight on my
weak joints, the odd thing is, I really don't have much in the way of
health problems. (Well, OK, I have allergies, but I've had those since
I was born... and they aren't all that bad for the most part,
especially since I've left southeast TX. And I'm nearsighted...)

It boggles doctors... who see me and immediately suspect I have high
blood pressure and the rest of the gamut for the obese... and then I
always prove them wrong. <G>

My blood pressure is OK, my bloodwork is great. It's just those pesky
weak ankles I was born with. They truly don't like me carrying this
weight load around. Neither do my knees, though those don't bother me
that much, just occasionally.

What I want to lose weight for is to get it off my ankles! I get so
tired of them being sore or my feet being sore.

I also hate that movie theater seats are tight, plane seats are tight,
booths in restaurants are tight and clothes shopping is hard.

And I hate the loss in flexibility. Not that I was ever super
flexible, but I notice I am less so now. The fat gets in the way.

Cynthia
Ignoramus13867 - 26 Jun 2004 19:35 GMT
>>>>> Well, my mother DID say I was fat, that I shouldn't sit in her good
>>>>> chairs because I'd break them, that I'd have trouble in life, etc...,
[quoted text clipped - 71 lines]
>
> Cynthia

Cynthia, then, I would say, get ready for some surprise improvements
once you lose weight. Things that you thought were normal etc, could
simply go away.

Just for example, I had heartburn 2-3x per week. It went away
completely.

i
Rainbow-Seeker - 26 Jun 2004 20:59 GMT
> Cynthia, then, I would say, get ready for some surprise improvements
> once you lose weight. Things that you thought were normal etc, could
[quoted text clipped - 4 lines]
>
> i

i, what are your numbers?  I have wondered for a little while on your
history on weight loss.  You seem to really be confident with what works,
and seem to have good advice often.  I am betting you have had some solid
success!  Also, I notice you have been here for a long time!!!  When I was
last here, you were around.  I had hoped to not ever be backtracking over
the same ground myself, but unfortunately here I am again with many repeat
pounds to lose.  I have made many changes from the last time I was here (ie:
now belong to a gym...much more active with "working out" than before).  I
had belonged to "Curves" for a while before moving here, but had lost the
ability to go for a while when a major emergency arose with my daughter.
Unfortuately, it was during those several months with her "stuff" that I
lost ground.  I now belong to a much larger and more complete gym.  I work
out on an average of 5 days per week.  I sometimes miss a day, but not
generally.  I seem to have a much stronger support system behind me now than
I have been able to have for a long time, and am expecting this to make a
significant difference with my success this time around.  This was a good
move for our family, and I am ready to take this bull by the horns once
again!!!

Hopeful
Ignoramus13867 - 26 Jun 2004 21:09 GMT
>> Cynthia, then, I would say, get ready for some surprise improvements
>> once you lose weight. Things that you thought were normal etc, could
[quoted text clipped - 6 lines]
>
> i, what are your numbers?

Sorry, I am lazy to post it too often, the numbers are 223/172/180 (as
of yesterday, did not weigh today). 5'11" 33 years old, small boned.

> I have wondered for a little while on your history on weight loss.

I was chubby as a child, not really fat but chubby. I stayed like this
for a while, then at about 26-28 I started to put on weight, and ended
up at 223 on May 2003.

After seeing my vacation pictures I freaked out and had some sort of
an epiphany, as Dally described it once, and decided to lose weight.

http://igor.chudov.com/weightloss/

> You seem to really be confident with what works, and seem to have
> good advice often.

I am sure that I also often have bad advice:) I like reading books, so
I read a few on weight loss.

> I am betting you have had some solid success!

It is unreal just how my life is so much better now. Just unreal.

> Also, I notice you have been here for a long time!!!  When I was
> last here, you were around.  I had hoped to not ever be backtracking
> over the same ground myself, but unfortunately here I am again with
> many repeat pounds to lose.

happens to the best of us, I am afraid that one day I can lose
interest and regain weight also. Hopefully it won't happen.

> I have made many changes from the last time I was here (ie: now
> belong to a gym...much more active with "working out" than before).
[quoted text clipped - 4 lines]
> more complete gym.  I work out on an average of 5 days per week.  I
> sometimes miss a day, but not generally.

that's great!

> I seem to have a much stronger support system behind me now than I
> have been able to have for a long time, and am expecting this to
> make a significant difference with my success this time around.
> This was a good move for our family, and I am ready to take this
> bull by the horns once again!!!

Hang around here Hopeful, it really helps.

i
Rainbow-Seeker - 26 Jun 2004 21:21 GMT
Your pictures look great, i!  Was your goal 180, and you just ended up
lower, or did I misread these?  Is "Dally" your DW?  I also love to read, so
am searching for info all of the time!  No one thing seems to work all on
it's own for me...it's more of combining knowledge to find the "thing" that
works best for me.  Keep up the great work!!!

Signature

Hopeful (282,279,145)

> >> Cynthia, then, I would say, get ready for some surprise improvements
> >> once you lose weight. Things that you thought were normal etc, could
[quoted text clipped - 59 lines]
>
> i
Ignoramus13867 - 26 Jun 2004 21:36 GMT
> Your pictures look great, i!  Was your goal 180, and you just ended up
> lower, or did I misread these?

180 was my goal, now I want to lose a few pounds to be under it.

> Is "Dally" your DW?

No, "Dally" posts here occsionally and she noted how so many people
had an "epiphany" one day when they realized that they could not live
like that longer.

> I also love to read, so
> am searching for info all of the time!  No one thing seems to work all on
> it's own for me...it's more of combining knowledge to find the "thing" that
> works best for me.  Keep up the great work!!!

good luck to you also...

i
Cynthia Perry - 26 Jun 2004 23:03 GMT
>>>>>> Well, my mother DID say I was fat, that I shouldn't sit in her good
>>>>>> chairs because I'd break them, that I'd have trouble in life, etc...,
[quoted text clipped - 80 lines]
>
>i

I have had heartburn, but it would only manifest when I ate salty
crunchy things... then followed it by eating sweets. So I learned not
to do that much... or face the consequences.

The same thing happens if I drink and eat sweets. I don't do that
either.

Cynthia
susanjoneslewis - 25 Jun 2004 03:43 GMT
Thanks for the kind support Cynthia, I'm positive Dallas and I will cope
and make the most of a really crappy situation.

Susan
280/191/165(mini)/140

> >Sorry to hear, but the sooner you know the sooner you can deal
> >with it.  I was a fat kid too, but when I was 12 at 5'9 I was
[quoted text clipped - 58 lines]
>
> Cynthia
Cynthia Perry - 26 Jun 2004 14:58 GMT
>Thanks for the kind support Cynthia, I'm positive Dallas and I will cope
>and make the most of a really crappy situation.
>
>Susan
>280/191/165(mini)/140

From what I've read... type 1 diabetes is partly generic in nature and
partly environmental. I have read that they believe it is triggered by
a virus... and is not something you can *prevent*.

So please, don't beat yourself up on it, just do what you can with
your son to help him cope. Bear in mind, he has to learn to make the
good choices for the rest of his life. If possible, make those choices
as pleasant as you can.

My husband is diabetic (type 2)... and he loves things like sweets and
breads and potatoes. And saturated meat fats. But I've been fixing
lots of really tasty meals without those things. They are now an
occasional treat. He also was the type to dump salt on his food... and
I am not. So he's learned to adjust to less salt as well. And he seems
to really like the meals he's getting and is very satisfied by them.
We eat very little in prepared foods, and plenty of vegetables. Fruit
often becomes dessert or our sweet replacement.

I also use things like sugar-free Jello, Atkins Ice Cream and such to
provide other desserts.

I trim meat fats to an extent... then add olive oil or canola oil or
sesame oil to marinades and such. So we get our fats, just less of the
saturated stuff.

His bloodwork has improved a lot since I moved in.

You and your son *can* do it! You've got a head start on it after all
for yourself, like I said, now you can be there for him.

Cynthia
OceanView - 25 Jun 2004 04:53 GMT
>>Sorry to hear, but the sooner you know the sooner you can
>>deal with it.  I was a fat kid too, but when I was 12 at
[quoted text clipped - 66 lines]
>
> Cynthia

Yes, that's the other extreme: shaming. But every parent with
a fat kid has some culpability.  There has to be a 'get real'
middle.

Anyway, not an easy situation and I hope it works out.
susanjoneslewis - 25 Jun 2004 03:38 GMT
Thanks Ocean for the support, I too was a fat kid and I have tried hard
to make Dal feel normal but at the same time I've tried to make sure he
knew there were issues. Thing is, the ADHD has seemed to take the
spotlight as far as moderating his behavior, not his eating habits. I
guess that's where I've failed as a mom. It just seems like it is
becoming more than I am emotionally equip to handle right now.

Susan
280/191/165(mini)/140

> > Dallas, my 11 year old son went to the dr yesterday for a
> > checkup and a refill on his allergy meds. Dal weighs 170
[quoted text clipped - 79 lines]
>
> Anyway, good luck with the tests.
OceanView - 25 Jun 2004 04:56 GMT
> Thanks Ocean for the support, I too was a fat kid and I
> have tried hard to make Dal feel normal but at the same
[quoted text clipped - 95 lines]
>>
>> Anyway, good luck with the tests.

I don't think you 'failed.'   Being a parent is a tough and
imperfect job. Im sure you can find some balance to work on
both.  Get help where you can. I'm sure you can deal with this
one way or another.
Beverly - 25 Jun 2004 13:19 GMT
> Thanks Ocean for the support, I too was a fat kid and I have tried hard
> to make Dal feel normal but at the same time I've tried to make sure he
[quoted text clipped - 5 lines]
> Susan
> 280/191/165(mini)/140

Susan,

As the parent of a soon to be 40 year old multi-handicapped child, I have
some idea of what you're going through at the moment.  Don't ever think
you've failed as a mom simply because you can't deal with everything all the
time.  Just take the most important health issue and concentrate on it.  I
juggled my priorities between CP, heart murmur, malfunctioning kidneys,
orthopedic problems, hearing problems, hyperactivity and a few other
problems associated with rubella syndrome children.  It can be a challenge
but just take it one day at a time and you'll be fine.

Believe me, there were times early in her life that I felt I just couldn't
cope with another problem.  Get all the help you can from family, friends,
teachers, health providers, etc.  Many of the health professionals can
provide you with agencies who deal with the specific problems you're dealing
with - take advantage of it.

I remember you mentioning his weight issue in earlier posts.  I'm sure any
changes you might have to make in his diet for this problem will help.

I always remember what her pediatrician told me years ago - God only gives
special children to special people.

Please keep us updated on Dallas.  Feel free to email me if you want to
discuss anything.

Beverly
byakee - 24 Jun 2004 06:49 GMT
Hark! I heard "susanjoneslewis" <susanjoneslewis@sbcglobal.net> say:

> Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
> been a "big" kid for his age and I suspect always will be, his father is
> 6'3 and a hefty guy. the Dr who is semi-new to us has pre diagnosed
> Dallas as having juvenile diabetes(t1). What I mean by pre diagnosed is
> we have a bloodworkup and screening tomorrow morning,

<snip>

> *sigh*
> I felt like a ton of bricks was dropped on me when the Dr said "juvenile
[quoted text clipped - 5 lines]
> dumb to beat myself up like this, but I have to wonder where I messed
> up.

I had many of the same symptoms last Winter (including the thirst
and urination), and even though I've had gestational diabetes in the
past, it *still* didn't sink into my head to check it out. And that's
my own body; you're second guessing the symptoms of someone else. So
please don't feel so bad -- now that you know, you're trying to get
him the best medical care, and that's the most important part.

> Mark reacted a bit differently which pissed me off too, he was
> pretty nonchalant about it and passed if off with a "if he ate better.."
> speech which I could have done without a f*cking lecture at that
> particular moment. I may have said 2 words all night after that.

No offense to Mark, but he's speaking out of ignorance. If Dallas
really is Type1, he didn't get it from his eating habits -- I'm
99% sure that it is hereditary, not environmental. For more info,
here is a good source:

http://www.diabetes.org/type-1-diabetes.jsp

> I don't really have many questions for you guys, except.. anyone have
> links or resources for me on this issue? and anyone have a child with t1
> diabetes? If/when we get a dx of t1 on him, should I seek the advice of
> a nutritionist? endo? which type of help should I get in that area? If
> its t1 I don't think I will feel comfortable with just our family dr.

I would seek an Internist -- I'm fairly certain that this is in their
area of expertise (that's who I go to). My local hospital offers classes
in nutrition and diabetes management; maybe yours does too? Your current
doctor should refer you to them if indeed your son is diabetic.

Best of luck, Susan, and please keep us posted...

Signature

J.J. in WA ~ mom, vid gamer, novice cook ~
       (COLD to HOT for e-mail)        
"Why do my knees feel like the wanna tear up?"
                           - Carl, ATHF

susanjoneslewis - 25 Jun 2004 03:47 GMT
Thanks J.J. In WA for the information, I think it's either an Internist
or an Endo that handles diabetes. I will get more information after the
blood/labwork is back and go from there.

And no offense to the Mark comment taken. He was and is ignorant about
this disease and he ended up apologizing profusely about his little
speech after we did some online research today together.

Susan
280/191/165(mini)/140

> Hark! I heard "susanjoneslewis" <susanjoneslewis@sbcglobal.net> say:
>
[quoted text clipped - 48 lines]
>
> Best of luck, Susan, and please keep us posted...
janice - 24 Jun 2004 07:46 GMT
Susan, I'm so sorry to hear this and can't even imagine how you must
be feeling.  I don't think diabetes is one of the things you would
tend to look for in kids, despite all the recent publicity about the
increasing numbers due to poor diet, although from what I understand
diet may not be the cause of this type which presumably makes it
different from early onset of adult type diabetes which is apparently
starting to show up in younger kids.
You really need to decide what to do next after you get a definite
diagnosis.  Do let us know how things go.    This is really tough for
you and your family.  

janice

>Dallas, my 11 year old son went to the dr yesterday for a checkup and a
>refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
>been a "big" kid for his age and I suspect always will be, his father is
>6'3 and a hefty guy. the Dr who is semi-new to us has pre diagnosed
>Dallas as having juvenile diabetes(t1).
susanjoneslewis - 25 Jun 2004 04:05 GMT
I think shattered, overwhelmed, terrified, terribly ignorant and
downright sad sums up how I'm feeling about all this.
Thanks for the kind support janice, I will let everyone know the
progress.

Susan
280/191/165(mini)/140

> Susan, I'm so sorry to hear this and can't even imagine how you must
> be feeling.  I don't think diabetes is one of the things you would
[quoted text clipped - 14 lines]
> >6'3 and a hefty guy. the Dr who is semi-new to us has pre diagnosed
> >Dallas as having juvenile diabetes(t1).
jmk - 24 Jun 2004 12:22 GMT
> Thanks gang for listening. I've gotta go now and dream up something for
> dinner.
>
> Susan
> 280/191/165(mini)/140

Susan, if there is anything that we can do to help, please let us know.
 We are all here for you.

Signature

jmk in NC

susanjoneslewis - 25 Jun 2004 04:07 GMT
Thank you very much jmk, will do. I rely heavily on this newsgroup
(silly as it sounds) for a plethora of things. Information, warmth,
support, education, entertainment and sometimes simply a place to vent.

Susan
280/191/165(mini)/140

> > Thanks gang for listening. I've gotta go now and dream up something for
> > dinner.
[quoted text clipped - 4 lines]
> Susan, if there is anything that we can do to help, please let us know.
>   We are all here for you.
Beverly - 24 Jun 2004 15:33 GMT
> Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
[quoted text clipped - 36 lines]
> speech which I could have done without a f*cking lecture at that
> particular moment. I may have said 2 words all night after that.

I'm sorry to hear about this, Susan.  Don't beat yourself up because you
didn't recognize it.  My daughter had lost quite a bit of her hearing before
her teacher (who had a deaf child) or I recognized the problem.  Looking
back we also wondered how we could have missed the signs.

Beverly

> Dallas doesn't know much about diabetes yet and we have briefly touched
> on the subject so far, about how his eating habits will need to change.
[quoted text clipped - 13 lines]
> Susan
> 280/191/165(mini)/140
susanjoneslewis - 25 Jun 2004 04:14 GMT
Thanks Bev,

In retrospect I keep trying to think back at incidents or situations
where I may have suspected it. Thing is now that this is an issue and if
we can get a handle on it, it may lessen alot of the other issues he
has, the ADHD can not be hurt by a better diet, surely not by a no sugar
diet. And the encopresis as well can benefit by a better diet. Weight
regulation may solve alot of his social issues also.

I keep trying to see the benefits of this diagnoses best I can. Also
with 2 out of 5 of us eating better around my home can't hurt the 3 that
don't eat as well as we do/will.

Susan
280/191/165(mini)/140

> > Dallas, my 11 year old son went to the dr yesterday for a checkup and a
> > refill on his allergy meds. Dal weighs 170 lbs and is 5'1. He's always
[quoted text clipped - 61 lines]
> > Susan
> > 280/191/165(mini)/140
 
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