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Thyroid Dilemma

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Carol Frilegh - 15 Nov 2003 02:44 GMT
I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
extract for years as I have hypothyroidism and with medication the "T"
levels are normal Now that I've lost weight and kept it off, I
discussed going off the supplement for six weeks with the doctor who
approves.

But I still have hair loss run a very low temp and am often fatigued
even with tetsibg normal My waking temp is below 96.
One of the side effects of stopping Eltroxin could be weight gain.
On the other hand, the less medication, the better for my immune system.
The option is mine.

What would you do?

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Diva
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The Best Man for the Job May Be A Woman

Ignoramus26064 - 15 Nov 2003 03:55 GMT
> I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
> extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 9 lines]
>
> What would you do?

I also take thyroid supplements (the Russian natural cow derived
hormone). Synthroid has no effect on me for some strange reason.  I
need to take them due to a partial thyroidectomy 10 years ago.

Some general signs of thyroid hormone deficiency are low temp, low
pulse, low energy, feeling fatigued, and hair loss. I always had low
pulse due to my running. My pulse is 54-56 these days after walking up
to the blood pressure machine. I test my BP and pulse a few times a
week as the machine is located in the same building where I work.

The general advice that I was given in Russia was to go by my feeling
and if I feel symptoms of low thyroid, to increase my dose slightly,
and if I feel hyper, to decrease it slightly, but to average my
condition over a few days to avoid swings.

Here in the US, the consensus seems to be to use tests, but the
doctors who prescribe this medication also listen to patients and how
much they ask for.

So, since you asked for a suggestion, my suggestion would be to
gradually reduce the dose and record your measurements (pulse, body
temp, how you feel etc) in a diary.

Do not make dramatic changes as their effects may not be immediately
apparent.

Also, as you are getting older, some symptoms of aging may look
similar to thyroid deficiency.

Just my layman's opinion, since you asked.

i
223/177/180
Carol Frilegh - 15 Nov 2003 12:03 GMT
> > I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
> > extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 43 lines]
> i
> 223/177/180

Ig, your advise makes sense. I've been havig dizzy spells lately and
the doctor ruled out stroke and cited migraine from our recent frequent
extreme weather changes and a stubborn deposit of ear wax that needs a
second attempt at flushing out.

This morning I noted a dizzy spell started 1/2 hour after I took my
Eltroxin. My BP is down to a very nice 110/60 and I attribute it to
exercise. I also felt my heart speed up slightly after the "T" med.
I am thinking of taking it every other day for six weeks and then being
retested. The doctor has approved suspending it or alternating. She
said since I've kept my 86 pounds off for four years, things may have
changed.

Notwithstanding being at this lower weight has been a dream come trye
especially in terms of feeling like a bormal person and knowing the
label of "fat" no longer applies.

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Diva
*****
The Best Man for the Job May Be A Woman

Ignoramus7170 - 15 Nov 2003 13:36 GMT
>> > I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
>> > extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 48 lines]
> extreme weather changes and a stubborn deposit of ear wax that needs a
> second attempt at flushing out.

you can have a dizzy spell for a thousand of reasons.

> This morning I noted a dizzy spell started 1/2 hour after I took my
> Eltroxin. My BP is down to a very nice 110/60 and I attribute it to
> exercise. I also felt my heart speed up slightly after the "T" med.
> I am thinking of taking it every other day for six weeks and then being

take half a pill every day, it is better.

> retested. The doctor has approved suspending it or alternating. She
> said since I've kept my 86 pounds off for four years, things may have
[quoted text clipped - 3 lines]
> especially in terms of feeling like a bormal person and knowing the
> label of "fat" no longer applies.

No doubt, great job Carol.

i
SnugBear - 15 Nov 2003 13:37 GMT
"Carol Frilegh" wrote
<snip>

> Notwithstanding being at this lower weight has been a dream come true
> especially in terms of feeling like a normal person and knowing the
> label of "fat" no longer applies.

This is my Christmas wish for each and every one of us here at asd.
(if not this year - than next!)

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Walking on . . .
Laurie in Maine
207/110  60 inches of attitude!
Start: 2/02  Maintained since 2/03

Cat - 15 Nov 2003 21:25 GMT
What were you doing in Russia?

Cat

> > I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
> > extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 43 lines]
> i
> 223/177/180
Ignoramus7170 - 15 Nov 2003 21:30 GMT
> What were you doing in Russia?

Going to kindergarten, school, and university, and then working
briefly.

i
223/177/180
> Cat
>
[quoted text clipped - 45 lines]
>> i
>> 223/177/180
Cat - 15 Nov 2003 22:16 GMT
Wow, that's cool! You've had an interesting life.

Cat

> > What were you doing in Russia?
>
[quoted text clipped - 52 lines]
> >> i
> >> 223/177/180
rosie read and post - 15 Nov 2003 14:24 GMT
> On the other hand, the less medication, the better for my immune system.
> The option is mine.

would you elucidate on that immune system compromise comment?
Carol Frilegh - 15 Nov 2003 15:07 GMT
> > On the other hand, the less medication, the better for my immune
> system.
> > The option is mine.
>
> would you elucidate on that immune system compromise comment?

I lost my weight over time and reached an ideal level in late 1999. My
physical health had always been excellent except for more frequent head
colds before I lost weight.

As you know i had taken lithium for 15 years and came off off it under
medical supervision. In Feb. 2000 I had pneumonia lost 19% use of one
lung ( now restored) and was given an anti biotic. in March
I reluctantly took a diminishing two week course of prednisone to
disolve nasal polyps. An allergist took exception to the "pred' and
even though the polyps wre gone, gave me several cortisone nasal
sprays, of which each had side effcts. i started a series of injections
for Dust Mite Allergy and then all hell broke loose. A near
anaphylactic reaction to the injections. Acute senitivity to foods,
synthetic materials and rubber. I was in constant gastric pain and had
terrible reactions to ecerything but cotton.

We have an MCS evaluation clinic at our largest hospital and teaching
center, Sunnybrook. I was diagnosed with ideopathic environmental
illness and slaved for the next few years to simplify my personal
environment.  When I began to react to grains and even rice i went on
the SCD diet and showed great improvement and better food tolerance.

This year there have been a lot of renovations to suites in our
building, paint, sanding and floor varnish and our baseboard heating
system has been changed and the heat poorly controlled which has caused
some reoccurance of reactions.
Considering my age, my efforts to research and apply what i learned
has put me well ahead of others on the support group in Canada for MCS
(Multiple Chemical sensitivity)

I also react strongly to electro magnetic fields, cell phones, radio
towers, streetcar cables and high speed internet connection.
Rosie i know you have dismissed all this but it has been verified by
others who have witnessed my reacations.

That should be enough TMI about me for another year.

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Diva
********
Still Alive, Year Five -219/141

rosie read and post - 15 Nov 2003 15:41 GMT
yes, i am aware of your physical history carol.................what i
meant was why do you believe your immune system was compromised due to a
thyroid supplement?

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read and post daily, it works!
rosie

in the practice of tolerance,
one's enemy is the best teacher.
..............................dalai lama

> > > On the other hand, the less medication, the better for my immune
> > system.
[quoted text clipped - 38 lines]
>
> That should be enough TMI about me for another year.
Carol Frilegh - 15 Nov 2003 20:08 GMT
> yes, i am aware of your physical history carol.................what i
> meant was why do you believe your immune system was compromised due to a
> thyroid supplement?

I never thought about it until lately when the author of the SCD diet
said to check with my GP about reducing or stopping thyroid meds.

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Diva
*****
The Best Man for the Job May Be A Woman

Jennifer A - 15 Nov 2003 16:48 GMT
> We have an MCS evaluation clinic at our largest hospital and teaching
> center, Sunnybrook. I was diagnosed with ideopathic environmental
[quoted text clipped - 16 lines]
>
> That should be enough TMI about me for another year.

My mom, who is in her mid 50's, had to retire early from her nursing career
because of a sudden onset of MCS.  She went to work one day and had an
anaphylactic reaction and nearly died.  It was sudden and numerous tests and
evaluations later found out she was allergic to many of the chemicals
(formaldehyde, latex, etc.) used in the hospital.  She's had to totally redo
her environment and carries an epi pen because simply going to a doctor's
office will cause a reaction for her.  She's also had to modify her WOE
because of food sensitivities that came along with this.
It's not a fun way to live and I wouldn't trade places with her or with you.

BTW there is a school in Oak Park, IL (I believe) that is being sued by
parents over the use of a wi fi network.

Jenn
Brad Sheppard - 15 Nov 2003 18:51 GMT
I'd ask my doc for his/her advice.

> I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
> extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 9 lines]
>
> What would you do?
Ignoramus7170 - 15 Nov 2003 19:02 GMT
> I'd ask my doc for his/her advice.

It seems that Carol already asked her doctor and wanted more
feedback. A very intelligent approach if feedback is carefylly
evaluated.

i

>> I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
>> extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 9 lines]
>>
>> What would you do?
Patricia Heil - 15 Nov 2003 23:53 GMT
I don't understand the issue about your immune system.
When I went hypothyroid, before I knew what was happening
and got on medication, I was constantly getting sick.
That stopped after I got on the medication.

> I've been taking the lowest dosage of Eltroxin, a synthetic thyroid
> extract for years as I have hypothyroidism and with medication the "T"
[quoted text clipped - 14 lines]
> *****
> The Best Man for the Job May Be A Woman
Carol Frilegh - 16 Nov 2003 01:26 GMT
> I don't understand the issue about your immune system.
> When I went hypothyroid, before I knew what was happening
> and got on medication, I was constantly getting sick.
> That stopped after I got on the medication.

What were your symptoms?

A substantial weight loss such as mine and the healthy diet I'm on may
or may not have changed how my thyroid functions. I think it's risky to
go off the meds, but sure would hate to be taking it if I actually
didn't need it.

There are cases of changes in thyroid functioning. Usually one takes
the supplement for life. I was looking for the experiences of others
here.

I explained my immune disorder as clearly as I could when i responded
to Rosie. It's ancient history on ASD and I don't say much about it
anymore.

Signature

Diva
*****
The Best Man for the Job May Be A Woman

Patricia Heil - 16 Nov 2003 15:14 GMT
When I got radiation for cancer 15 years ago, it included
my throat and killed the thyroid.  I was exhausted, easily
confused, and got sick a lot.  I ballooned up to 240
pounds in spite of moving into a house with stairs and
a lawn to take care of.  I reported this to my doctor and
he tested and found my thyroid hormone was low.

> > I don't understand the issue about your immune system.
> > When I went hypothyroid, before I knew what was happening
[quoted text clipped - 20 lines]
> *****
> The Best Man for the Job May Be A Woman
Carol Frilegh - 16 Nov 2003 22:15 GMT
> When I got radiation for cancer 15 years ago, it included
> my throat and killed the thyroid.  I was exhausted, easily
> confused, and got sick a lot.  I ballooned up to 240
> pounds in spite of moving into a house with stairs and
> a lawn to take care of.  I reported this to my doctor and
> he tested and found my thyroid hormone was low.

I spoke to a woman today on the same dose of Eltroxin as mine. When she
cut back to alternate days she became  easily tired and had other
symptoms.

My decision is to keep taking the supplement.

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Diva
********
Still Alive, Year Five -219/141

 
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